Canavan Research Illinois is a nonprofit corporation and 501(c)(3) public charity, that was born out of desperation to save all the children battling Canavan disease. Canavan Research Illinois is an all volunteer organization, and virtually every penny donated goes directly to support life saving research.

Based in Illinois (not a chapter of any other organization) Canavan Research Illinois is devoted to victims of Canavan disease worldwide. Because Canavan disease is rare and receives negligible public funding, they rely on private donations and grants to support gene therapy, pharmacological, and stem cell research offering new hope to treat and cure Canavan disease.

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